Project dates: 17/12/2019 - Ongoing
Timely access to appropriate information, care and support is critical to enabling people with palliative care needs to spend more days in their preferred place of care, which is typically their own home. Understanding the best way of providing responsive community based palliative care, and determining how available digital health technology may assist with this process, is an important first step in planning a new model of community palliative care.
This co-design project is designed to define the key elements required to deliver optimal 24-hour, seven day per week care to people with palliative care needs who wish to spend as many days as possible at home. It will achieve this by:
- identifying and combining the available global knowledge
- seeking the input of consumers, health professionals and identified digital health providers
- collaboratively co-designing a new model of care.
Project outcomes:
- The project findings will form the basis for collaboratively developing a new model of care with key stakeholders that integrates best available evidence and digital health technological solutions to enable people with palliative care needs to spend more days at home.
Project partners:
- University of Technology Sydney, Improving Palliative, Aged and Chronic Care Centre
Funding / Grants
- Sydney Partnership for Health, Education, Research and Enterprise (SPHERE) – Palliative Care Clinical Academic Group (PC-CAG) under the Seed Grant Scheme, 2019
Chief Investigators
- Professor Jane Phillips
- Professor Meera Agar (UTS)
- Professor Gideon Caplan (South Eastern Sydney LHD)
- Dr Caitlin Sheehan (South Eastern Sydney LHD, Calvary Health Care)
- Janeane Harlum (South Western Sydney LHD)
- Dr Susan Trethewie (Sydney Children’s Hospital Network)
- Dr Tim Luckett (UTS)
- Associate Professor Louise Hickman (UTS)
- Dr Irina Kinchin (UTS, Trinity College Dublin, the University of Dublin)
- Dr Nicole Heneka (UTS)
Team
- Dr Kat Urban (Prince of Wales Hospital, Sydney, NSW)
- Tricia Parker (Liverpool and Braeside Palliative Care Consumer)
- Brian Long (Liverpool and Braeside Palliative Care Consumer)
- Joshua Cohen (Calvary Health Care)
- Professor Fliss Murtagh (Hull-York Medical School, University of Hull, UK)
- Isabelle Schaefer (UTS)
- Dr Domenica DiSalvo (UTS)
