The Australian Bronchiectasis Registry with International Paediatric Bronchiectasis Registry

  • The Australian Bronchiectasis Registry with International Paediatric Bronchiectasis Registry

International and Australian Paediatric Bronchiectasis Registry

Non-cystic fibrosis bronchiectasis is caused by chronic infection of the airways and results in chronic cough, excess sputum production and in some cases chest pain, shortness of breath and coughing up of blood. Despite its relatively low profile, bronchiectasis is a common condition in Australia and remains a major contributor to chronic respiratory morbidity in less affluent populations, both Indigenous and non-Indigenous.

There is currently little information available on the incidence, diagnosis or mortality rates. While recent advances in the management of bronchiectasis patients have been made, evidence for the safety and efficacy of treatments in Australasia remains scarce. The Australian Bronchiectasis Registry has been established by a group of Australian respiratory specialist doctors and the Lung Foundation Australia.

Aims:

  • To capture a comprehensive and quality data set on bronchiectasis aetiologies, comparative treatment regimes, demographics, determinants of quality of life, healthcare resource use, severity and prognosis in both adults and children with this condition.
  • To generate opportunities for clinical research collaboration with the European Bronchiectasis Registry (EMBARC) and US Bronchiectasis Registry (COPD Foundation) through sharing of anonymised data, protocols, research ideas and expertise.
  • To build the network of bronchiectasis researchers and clinical experts in Australia and facilitate future clinical research.
  • To increase awareness and information for healthcare professionals.

Chief Investigators

Partners