Project dates: 05/12/2018 - Ongoing
This project aims to respond to the harrowing prospect of a child’s death by providing foundational evidence of how clinicians and families communicate effectively with children with life-limiting conditions. In developing the first nation-wide repository of video-recordings of paediatric palliative care consultations, the project is designed to generate new knowledge by using conversation analysis to examine how these conversations occur in real-life clinical settings. Expected outcomes are major knowledge breakthroughs informing research, policy, and practice, by revealing more effective communication approaches. The findings intend to provide significant benefits to researchers, clinicians, healthcare users, and policy makers.
Funding / Grants
- Australian Research Council Discovery Project (DP180101941) (2018 - 2020)
Chief Investigators
- Professor Susan Danby
- Associate Professor Stuart Ekberg
- Distinguished Professor Patsy Yates
- Adjunct Associate Professor Anthony Herbert
- Associate Professor Natalie Bradford
- Professor Myra Bluebond-Langner
- Dr Johanna Rendle-Short
Partners
-
Children’s Health Queensland Hospital & Health Service -
Australian National University -
University College London -
John Hunter Children's Hospital, Newcastle -
Royal Children's Hospital, Melbourne -
Women's and Children's Hospital, South Australia -
Perth Children's Hospital
Publications
- Ekberg, Stuart, Danby, Susan, Herbert, Anthony, Bradford, Natalie K., Yates, Patsy (2020) Affording opportunities to discuss deterioration in paediatric palliative care consultations: A conversation analytic study BMJ Supportive and Palliative Care, 10 (2), pp.Article number: e13 1-9.
- Ekberg, Stuart, Danby, Susan, Rendle-Short, Johanna, Herbert, Anthony, Bradford, Natalie, Yates, Patsy (2019) Discussing death: Making end of life implicit or explicit in paediatric palliative care consultations Patient Education and Counseling, 102 (2), pp.198-206.
