Parents of children with brain tumours have expressed that significant barriers exist to accessing support, such as heightened demands on their time, a need for psychosocial support where the care provider is cognisant of their cancer-related needs, and de-prioritising their own needs during their child’s health crisis. The CONNECT project aims to fill this gap, co-designing resources and supports with clinicians and consumers. The co-designed project involves iterative phases to build and refine the intervention components which will then be tested in a future implantation effectiveness study.
Chief Investigators
Other Team Members
- Melanie Rolfe (Chief Investigator)
- Stuart Ekberg
- Evonne Miller