Conceptualisations of wellbeing: Through the eyes of primary carers of children with autism

Primary carers play a pivotal role in the lives of children with autism across their lifespan. Current understandings of wellbeing within autism spectrum literature tend to be limited within a negative, dyadic, reductionist narrative, yet, wellbeing, autism, and caregiving are multidimensional, complex constructs that shift according to context and time. Strength perspectives on autism and caregiving present a more balanced view with individual perceptions linked to wellbeing outcomes. More complete understandings are thus essential to better support primary carers and those they care for. This research proposes a new holistic conceptual framework and an innovative combination of survey and visual narrative methods to deliver more comprehensive perspectives on autism, caregiving, and wellbeing.


Chief Investigators